Life has become somewhat of a rollercoaster at the moment and I really want to get off!
The weekend saw another trip to A&E with Holly. She has been having some leg pain since Christmas Eve and as this was one of her first symptoms in February we decided that it needed to be checked out. All was ok with her bloods and general mot,
but we would need to go and see Amos in Addenbrookes to run some more tests.
Today was clinic with Amos. He reassured Holly that he wasn't unduly worried but it obviously needed checking out. It was possible that her magnesium levels were low (this causes leg pain, especially at night) but there is also the possibility that the neuroblastoma has come back. He reassured Holly that if this was the case he has a "plan B" up his sleeve.
This is obviously a worrying time and we won't have any results until the end of the week/beginning of next week. Please keep Holly in your thoughts and I will update as soon as I can.
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Obviously a horribly worrying time - we go through this sort of thing all too frequently also - just different symptons for us. That said, Gabe used to complain about terrible back pain post his intensive phase of his treatment - the exact point of pain was where his spinal tumour had been.
ReplyDeleteTo this day, I don't know what caused that pain but naturally I was terrified at the time that the tumour had come back. It had not though. So try (although it is nearly impossible to do) to remember that all sorts of things cause aches and pains, not just the nasties.
Really thinking about you though Kerry - this childhood cancer roller coaster is hard but boy, doesn't it make us strong? Thinking of you all.
Lots of love,
The Davies 4
PS - Believe in Amos and in Holly's determination and strength.
Hello, holly i hope you are much happier up there feeling no pain and suffering,and with god by your side.Everyone at school is very very upset but everyone told them to be strong..i wish when you asked me to visit you i was able to come and that makes me feel sad.
ReplyDeletewell all i can say know is i love you alooooooot and your mum is a very great mum !!! :) Alicia 11 one of your best friends