A Normal Week

Holly is doing great.

Her blood counts are good and she has been at school every day, apart from clinic day. We were up in Addenbrookes on Tuesday to see Amos. He is delighted at how Holly is doing and everyone has commented on how well she looks. We were given the start of the maintenance meds and sent on our way.

Today has been the first day of the retinoic acid meds. It is going to take a while to get to grips with it (to say the least!). Holly has to have 5 capsules twice a day. Holly doesn't take tablets/capsules! There is a leaflet all about how to open the capsules and get the meds out (very complicated, involving heating the capsules on a spoon, snipping the end off and squeezing the goo out). It took ages as the capsules are tiny and they kept slipping out of my gloved hands and goo was shooting everywhere! I am sure it will become easier the more I do it. Next appointment is Tuesday at Lister as Amos is doing a clinic there.

Izzy and Harry both have nasty coughs and colds (again). They are both on anti-biotics to try and clear it quickly to try and avoid Holly getting it. They are fine though, Izzy is very much looking forward to being 3 on Saturday and her party on Sunday. Heres hoping all are well.