Addenbrookes

Well, as predicted, Holly is not a morning person.

After a very early start, we spent the day at Addenbrookes. Holly had a bone marrow aspirate and trephine procedure (this basically involves syringing up some of Holly bone marrow and also a sample that has to be crystallized). As it can be very painful Holly was put to sleep. As always, she complained that she didn't want to be put to sleep and, as always, she thoroughly enjoyed it!!!
We wont get these results until next week.

After coming round she had a ct scan of her tummy. Neuroblastoma starts in the adrenal gland and causes tumours (generally in the tummy and pelvis) so Amos was looking for any lumps and to see if the adrenal glands looked unusual. I was expecting to get these results next week too but Amos told me he would look at them today and, if we waited, he would come and see us. Only 45mins after the scan Amos came rushing over to tell us that the scan was all clear. No tumours and the adrenal glands are completely normal. Thank God. He also told us that he was not worried at all and was just doing all these tests to confirm (what he suspects) that the nb has not come back. He is also speculating that the leg pain could be a side effect of the retinoic acid.

I consider us so lucky to have Amos as our consultant. He is so good with Holly and is always scrupulously honest with her (and me). He knows how worried we have been (Holly bursting into tears each time she has seen him recently is probably a give away!). We trust him implicitly and if he tells me not to worry I am going to try my hardest not to.

Thank you all once again for all your kind messages and texts. I am sure all your positive vibes and prayers are working.