Tuesday 23 June 2009

Day 1

After a very busy day Holly was exhausted. She slept and snored from about 7.30pm right through the night. She even missed Eastenders!

Her mouth looks a lot better today although she is still struggling with swallowing. She is managing to take some medicine but not others. After a discussion with the doctors it has been decided that the easiest thing may be to put a nose tube in tomorrow for taking medicine. This will not be a pleasant procedure but it will make things more comfortable for Holly while she is feeling rubbish.

I had a lovely coffee with my c2 friend Chris and her gorgeous little boy Gabe who were visiting the day unit. Gabe has also been through this process (with flying colours) and is an inspiration. I must say a huge thank you for Hollys presents (and thanks Aunty Toe too), and Gabes wonderful picture has pride of place on Hollys wall now. She was delighted but sad she couldn't see them both as she is in isolation. Its very theraputic to be able to talk to someone who really understands and I returned feeling very positive and refreshed.

The second lot of stem cells were transplanted today and all went smoothly. The taste and smell are still pretty overwhelming and it has made Holly sick a few times. She is still being incredibly brave and keeps apologising when she is sick! Considering what she is going through she is doing really well and I am so proud of her.

I would like to send all my thanks and love to Julie and all the girls for Sunday. They are doing a sponsored aerobathon to raise money for Holly and the Neuroblastoma Society. Good luck girls, we will be with you in spirit.

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