Holly had a great night. She has tolerated the feed into her tummy and there has been no sickness.
The doctors came round en masse today and say that she is doing amazingly well for 3 weeks post stem cell transplant. She has felt a bit sick today but hasn't thrown up at all. The nose tube has been in now since yesterday morning and Holly is now doing her own meds. She has found it better to push them into the tube herself because then she can control how quickly they are done. It was a great idea of the nurses to let her do it, and it seems to have helped.
She has had a good day today. She did music therapy this morning. This was on a laptop and she created her own cd. The lady is coming next week with a keyboard so she can add some "live" sounds to her masterpiece. This afternoon she has spent some time with the teacher and done a little bit of schoolwork. Then we decided, as she was off her pumps, to go for a wander. Well I wandered and Holly sat there, enjoying being pushed about! We walked for about an hour and a half, all over the hospital and around the grounds. We even went up to the 10th floor to check out the view. I was knackered. Holly wasn't...
Since we have been back she has been re-attached to her pumps and has done her meds. She is now chatting away on MSN and watching all the soaps. It has been lovely to see her so good today.
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So glad to hear that Holly had a good day - it is strange because even though it is an awful thing that our kids have had to endure, I look back at the stem cell transplant time with fondness - Gabe was receiving life saving stem cells, and we spent each and every precious second together - it is amazing how close it is possible to be with your child!
ReplyDeleteYou are both doing amazingly well.
Gabe coming to the day unit to see Amos today so look out for him - not with me though - I am at work - so best get on with doing some!
Love Chris x
So relieved to hear that things were a little better today, your blog has been so powerful and we wait to read it every day. You sound so brave and I wonder where you get all that strength from. Just to let you know that you are all in our thoughts and prayers and counting down the days to when you can come home.
ReplyDeleteGod Bless. Martina XXX